Braden had his 6 month pacemaker check at Children's today. His pacer is still checked over the phone every other month, but we get to go to Seattle for these bi-yearly checks like we had today. It was strange to drive onto the property this morning; Darth and I experienced a flood of emotions. We had our middle daughter and Braden, the other two girls had colds and had to stay away with their germs (they shared them with Darth's mom instead!). After checking in, we had a delicious cafeteria breakfast and headed down a floor to wait. (The breakfast actually was great, there is a lot of variety to choose from. We just had to eat there SO MANY TIMES during the hospitalization that it has taken us a while to want to eat there again.) Sissy went to the sibling playroom and Braden, Darth, and I started off the series of appointments with a chest x-ray. So grateful for Children's. They are so geared for kids (obviously), that it was a relatively quick and not-too-upsetting experience for baby. We have had our share of x-rays with Braden so this time was much appreciated.
Next we went in for the vitals: weight, height, blood pressure. I think he was somewhere around 17 and a half pounds. It was in kilograms and I don't make that conversion in my head yet!
Now off to the exam room. We had an amazing tech do the speediest EKG ever. It was over before it began. Darth and I were watching her get out all the wires and both thought, "How is Braden going to do with this?" He has such busy hands now that we envisioned him pulling off the leads as fast as she placed them.
Another tech came in to do the pacer check: more leads, more holding still. Braden did great with this test too.
The cardiologist came in to debrief with us. Basically, all looks great. Braden's pacemaker battery is full, meaning that he isn't using up a lot of battery at this point. Good news because it puts battery replacement that much farther away on the horizon. The test results showed that he still has an underlying rate, but it is very slow, more like a sleeping rate than an activity one. This has shown up in the past and was confirmed again today. It is a comfort to know that even though he needs the pacemaker at this point, the heart could still beat without it. The communciation just isn't working from atrium to ventricle. Still praying . . . !
Thanks for all your continued support. God is still getting the glory from this little wonderful Braden boy! We are grateful for His blessings.
-Jenni & Darth